Filed in Category Pediatric News
I am 18 weeks pregnant. I received news on monday that my baby has a Hypoplastic Right Ventricle. I had an amniocentesis performed to make sure that it is not a chromosome problem. If it is, she will not live long after birth. She also has fluid around her heart. If it moves she will die of heart failure. If anyone has been through this or has any information about any of this please let me know. I need as much information as possible. I was referred to Johns Hopkins and have an appointment on the 22nd with a pediatric cardiologist. I’m a mess.
6 Comments so far
Powered by Yahoo! Answers
Radiology Technician - NCLEX Secrets
You can syndicate both the entries using
Pediatric RSS Feeds and the Pediatric Comments Feed.
Support WordPress.
This is so sad, but try to stay hopeful!
In the meantime there is a support group for this… http://www.hypoplasticrighthearts.org/
Perhaps there you can find answers. Best of luck to you!
I was a nanny to a baby who had this diagnosed at twenty weeks. He had a small chance of living, but the mother went through the pregnancy and stayed positive and the baby had an operation right after birth. He is now nine months and healthy. He had really small chances of living, like they told her 15-20% but he ended up okay. Doctors never really know, and it depends on your baby and your health. As long as there is some chance and the baby is alive in your womb, technically you have a chance and although it won’t be easy, you could have a good outcome.
my boyfriend was born with aortic stenosis and had heart surgery right out of birth. His chance of surving was like really really slim and here he is today 3 surgerys later with a little on of his own on the way. I’m sure your terribly worried but the less stressed you stay the healthier it is for the baby, just have faith and i wish you the best!
i have no suggestions just prayers for you and huggggssss as a mom and mom to be i can only imagine your fears and worries right now:(
I truly hope all goes well with your baby and you may you have a blessed healthy bundle of joy with as few complications as possible.
i found this website maby it’ll help???
I’m sorry to hear that, i’m not much of a use cause i never went through it with a child of my own, nor do i know anyone close that’s gone through it. But i really hope everything turns out alright.
You have all of our love and support
I have no information but wanted to send you my thoughts and prayers. After you meet with the dr and get more information, I would search for a support group. Maybe your dr would be able to refer you.
Best wishes to you and your little one.